MacART member awarded CIHR Health Impact Systems Fellowship

Autism Care

Research
Education
Community
Policy

Research

“Future research needs to focus not only on the biological markers of ASD but also include data about functioning, participation, and environmental barriers and facilitators.”

Dr. Olaf Kraus de Camargo  //  Developmental Pediatrician

 

MacART is laying the foundation for creating a systematic way of linking scientific research on Autism Spectrum Disorder (ASD) at McMaster University to clinical practice at McMaster Children’s Hospital.

The physical proximity of McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University has a number of characteristics that provides the rare opportunity for collaborative research. Taking advantage of existing university and clinical infrastructure and cross-appointments for clinicians at the university, ASD experts from these organizations are coming together to integrate ASD research into clinical practice.

The focus of MacART members’ research is in the areas of basic science, clinical practice, clinical research, epidemiology and statistical modelling, knowledge translation and exchange, and social science research. By promoting the collaboration of stakeholders across disciplines, MacART is reducing barriers to implementing research in clinical practice, with the goal of advancing autism care through meaningful research.

Learn more about our research HERE.

Education

MacART members are now supervising more than 50 research trainees at the undergraduate, graduate, and postgraduate levels, and are engaged in the mentoring of junior and intermediate faculty members.

In the future, we intend to establish research and clinical training programs for students in McMaster’s undergraduate medical, health sciences, and psychology programs, and for residents and fellows in Pediatrics and Psychiatry.

By training and mentoring emerging researchers and practitioners, we will help to solidify their understanding of and commitment to using basic science to inform their clinical practice, and to use their clinical experience to help formulate research questions. It is our belief that involving these learners in MacART educational activities will promote their use of practices that advance autism care through meaningful research.

Community

“Our scientists are working collaboratively with local clinicians to generate the evidence needed to improve autism services. This symposium is a great example of McMaster’s community engagement efforts.”

Dr. Patrick Deane // President & Vice-Chancellor // McMaster University

 

The community engagement component of MacART strives to work with stakeholders and involve them as partners in every step of the research process.  By doing so, the questions that drive research begin to change. They become more meaningful because they address the real day-to-day challenges faced by children and their families, and the clinicians supporting them.

MacART aims to increase participation and involvement of members of the McMaster and Hamilton communities in the research process. With community members driving the research, new and relevant knowledge can be produced to bridge the research-to-practice gap in ASD and advance autism care through meaningful research.

Policy

“People whose lives are connected to the challenge of autism can share knowledge – from clinicians to educators to parents – and what an amazing opportunity that is. We have a real opportunity to translate challenges into research, and research into practice that will help families living with autism.”

Rob MacIsaac  //  President & CEO // Hamilton Health Sciences

 

Policies should be created using the best available evidence that make positive impacts on the lives of individuals with ASD, along with their families.

MacART’s founder, Stelios Georgiades, serves on both federal and provincial advisory committees about ASD treatment funding.  Along with the wide-ranging expertise of its many ASD experts, MacART is set to act as a highly credible source of evidence-based information to influence and inform public policy about the provision and funding of ASD diagnosis, treatment, and family supports.

MacART will continue to find ways to collaborate with policymakers to both learn more about the policymaking process, and to contribute our expertise and knowledge to inform policymaking, in order to advance autism care through meaningful research.

MacART is pleased to announce that one of our members, Dr. Stephen Gentles, has been awarded a Health System Impact Fellowship from CIHR for a project titled "Strengthening the health system to support caregivers of children with autism to engage in their child’s care". The HSI Fellowship creates opportunities for fellows to apply their research to critical challenges in healthcare that are addressed by health systems and related organizations.

The proposed fellowship project is a partnership with Autism Ontario, and has two aims. First, is a review of the literature using systematic methods to summarize what is known about the factors influencing parent involvement in their child’s care. Second is the development of a new measure of parents’ readiness and ability to meet these demands for involvement. Information for developing this measure will come from the literature review and from interviewing people on both sides—parents of children with ASD, and professionals that provide ASD services. The measure will then be tested to ensure it works well in a clinical setting. When ready, it will be made available, free of charge, for care providers across Canada to monitor and improve service delivery to families of children with ASD.

Autism Spectrum Disorder (ASD) is estimated to affect 1 in 66 children, or roughly 350,000 people, in Canada. The impact is far greater when one considers the complex needs of families affected by ASD. Autism Ontario is a non-profit organization whose goal is to strengthen support for caregivers and families of children with ASD, and it works with government to understand the needs and find solutions. More and more, parents or caregivers of children with ASD are being asked to play a role in their child’s intervention services and care. While research shows such involvement can be useful, the extra demands can be difficult for some caregivers for a variety of reasons. Health, education and other systems of care need a way to better understand, measure, and support parents’ readiness to meet demands of engaging in care. With the right knowledge and measurement tools, such systems can tailor and adjust how they involve caregivers to be more sensitive to their unique needs and strengths. This will prepare such systems to better support family health at a critical time, promoting better outcomes.
 

We are delighted to support this research program, which directly reflects the partnership between MacART and Autism Ontario and the vision to advance autism care through meaningful research.